\u201cLas preguntas de Delfina\u201d, un conto que d\u00e1 resposta a centos de preguntas<\/strong><\/p>\nDelfina ten xa 26 anos e est\u00e1 moi ilusionada coa publicaci\u00f3n dun conto que recompila moitas das preguntas que fac\u00eda \u00e1 s\u00faa nai, Marisa, cando era pequena e non entend\u00eda as cousas que lle pasaban. En ocasi\u00f3ns, v\u00edase moi diferente ao resto de nenos e nenas e por iso, cada noite ao irse a durmir, preguntaba \u00e1 s\u00faa nai sobre todo aquilo que lle intrigara durante o d\u00eda. Por que me miran? Por que me sorr\u00ed xente pola r\u00faa que non co\u00f1ezo?<\/p>\n
Con moita paciencia e tenrura, Marisa tentaba acougar a curiosidade da s\u00faa filla e axud\u00e1balle a entender que ti\u00f1a s\u00edndrome de Down. Onde o te\u00f1o? Quen che dixo que o te\u00f1o? As s\u00faas preguntas non cesaban e, \u00e1s veces, Marisa non sab\u00eda ben como respondelas. Noite tras noite, despois de atender as incesantes preguntas de Delfina, Marisa consultaba foros para buscar respostas ou consellos doutros pais ou nais e, ademais, anotaba no seu computador todas as d\u00fabidas da s\u00faa filla.<\/p>\n
\u201cDesde moi pequena deime conta de que a xente me miraba dunha maneira particular\u201d, asegura Delfina.<\/p>\n
Anos despois, esta nai e psic\u00f3loga arxentina pensou que seguramente as d\u00fabidas de\u00a0 Delfina tam\u00e9n as ter\u00edan outros nenos e nenas como ela e outros moitos que, sen s\u00edndrome de Down, tam\u00e9n quer\u00edan saber m\u00e1is. Ademais, era consciente de que moitas persoas adultas desco\u00f1ec\u00edan a realidade das persoas coa s\u00edndrome de Down e que, \u00e1s veces, ese desco\u00f1ecemento lev\u00e1balles a facer preguntas \u00e1s familias ou \u00e1s propias persoas con s\u00edndrome de Down que poder\u00e1n incomodarlles Tiv\u00e9chela moi maior? Est\u00e1 enferma? Sabe ler ou sumar?<\/p>\n
As\u00ed foi como en 2015, Marisa Aguirre comezou a traballar para que o proxecto fose unha realidade que respondese as d\u00fabidas que, en xeral, pode ter a sociedade sobre a s\u00edndrome de Down. \u201cAs preguntas de\u00a0 Delfina\u201d \u00e9 un marabilloso conto para maiores de 6 anos que, a trav\u00e9s das ilustraci\u00f3ns de Paula M. Mart\u00ednez e das cuesti\u00f3ns de Delfina, explica o que significa ter s\u00edndrome de Down, a importancia da inclusi\u00f3n e como \u00e9 o proceso de aprendizaxe polo que pasan as familias.<\/p>\n
\u201cNas s\u00faas p\u00e1xinas xorden as d\u00fabidas que moitos nenos e nenas, con e sen s\u00edndrome de Down fanlle aos seus pais ou nais e estes non atopan resposta. Por iso non \u00e9 s\u00f3 un conto, sen\u00f3n tam\u00e9n unha gu\u00eda para pais, nais e titores que axuda a explicar que \u00e9 a s\u00edndrome de Down e como ha de comportarse a sociedade ante unha persoa con trisom\u00eda\u201d explica a autora.<\/p>\n
\u201cTentei inculcar o ensino que transmitimos \u00e1 mi\u00f1a filla Delfina, facendo fincap\u00e9 no respecto e a empat\u00eda, valores necesarios nas etapas m\u00e1is temper\u00e1s do desenvolvemento e desta forma educar a futuras persoas adultas m\u00e1is concienciadas coa s\u00faa contorna\u201d.<\/p>\n
<\/p>\n
\u2018TRANQUILA\u2019, o c\u00f3mic sobre a figura dos irm\u00e1ns que provoca un cambio de mirada<\/strong><\/p>\nJessica Requena ti\u00f1a seis anos cando soubo que \u00eda ter un irmanci\u00f1o. A s\u00faa emoci\u00f3n foi inmensa e tras uns meses de espera, por fin co\u00f1eceu a Sergio, o seu irm\u00e1n pequeno con ollos achinados. Jessica estaba feliz e por m\u00e1is que a s\u00faa nai lle explicase que o seu irm\u00e1n era diferente, que ti\u00f1a s\u00edndrome de Down, ela segu\u00eda encantada e chea de ilusi\u00f3n. El aprender\u00eda as cousas algo m\u00e1is amodo, si, pero segu\u00eda sendo o seu novo e esperado compa\u00f1eiro de xogos e de vida.<\/p>\n
A vida de Jessica xunto ao seu irm\u00e1n foi en grao sumo alegre e feliz. Xuntos pasaron momentos \u00fanicos e moi divertidos, e tam\u00e9n alg\u00fans m\u00e1is complicados, como en todas as familias. Jessica era o apoio de Sergio, a s\u00faa gu\u00eda, a s\u00faa defensora e amiga. Para ela, Sergio foi a alegr\u00eda da s\u00faa vida. Por iso, quixo plasmar nun c\u00f3mic as vivencias xunto a el e contarlle ao mundo que ter un irm\u00e1n con s\u00edndrome de Down \u00e9 toda unha sorte.<\/p>\n
\u201cO meu irm\u00e1n foi un exemplo de vida a seguir. Sempre o valorei moit\u00edsimo e sentinme\u00a0 superorgullosa e con moita sorte de telo como irm\u00e1n. Tras a s\u00faa perda, veume enseguida a idea de deixar por escrito a s\u00faa vida. Ti\u00f1a a sensaci\u00f3n de que non quer\u00eda esquecer nada das s\u00faas case 25 anos de vida. Primeiro, pensei en escribir un conto porque ti\u00f1a claro que quer\u00eda acompa\u00f1ar todo de imaxes. M\u00e1is adiante, atopeime con Santi, antigo compa\u00f1eiro de colexio e amigo, e veume \u00e1 mente a idea do c\u00f3mic, xa que el escribe c\u00f3mics. Para a mi\u00f1a gran sorpresa, antes de propo\u00f1erlle nada, prop\u00faxomo el\u201d.<\/p>\n
As primeiras palabras de Sergio, os seus primeiros pasos, como aprendeu a montar en bicicleta, as s\u00faas experiencias no colexio, trasnadas ou a s\u00faa paix\u00f3n pola danza e a comida son algunhas das cousas que Jessica quixo narrar neste c\u00f3mic tan tenro e emotivo. Ademais, grazas ao traballo dos guionistas de c\u00f3mics Santi\u00a0 Selvi e Gol, Jessica tam\u00e9n conseguiu transmitir unha mensaxe moi contundente: \u201ccando un quere algo, todo \u00e9 posible con esforzo, paciencia e constancia\u201d.<\/p>\n
Efectivamente, tal e como supuxo Jessica, o feito de que esta vida fose narrada en formato c\u00f3mic fai que a s\u00faa lectura sexa moi atractiva e amena. A persoa que o le, case sen darse conta, verase envolvido nunha historia que reivindica a importancia de \u201cgozar de cada segundo a pesar dos inconvenientes e dificultades que poidan xurdir na vida e no d\u00eda a d\u00eda\u201d, sinala Jessica.<\/p>\n
Outro dos obxectivos deste libro \u00e9 concienciar aos seus lectores e lectoras da importancia da inclusi\u00f3n das persoas con s\u00edndrome de Down na sociedade.<\/p>\n
<\/p>\n
Feliz D\u00eda do Libro!<\/p>\n","protected":false},"excerpt":{"rendered":"
Hoxe, 23 de abril, celebramos o D\u00eda do Libro e desde Down Galicia queremos recomendar d\u00faas historias sobre s\u00edndrome de Down e inclusi\u00f3n. \u201cLas preguntas de Delfina\u201d, un conto que d\u00e1 resposta a centos de preguntas Delfina ten…<\/p>\n","protected":false},"author":1,"featured_media":14784,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"give_campaign_id":0,"footnotes":""},"categories":[592,593],"tags":[],"class_list":["post-14783","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias-sindrome-de-down-gl-lf","category-novas-gl-lf"],"acf":[],"yoast_head":"\n
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