{"id":15444,"date":"2018-03-26T11:01:01","date_gmt":"2018-03-26T09:01:01","guid":{"rendered":"https:\/\/downgalicia.org\/as-entidades-down-de-galicia-tamen-conmemoraron-o-dia-mundial-da-sindrome-de-down\/"},"modified":"2018-03-26T11:01:01","modified_gmt":"2018-03-26T09:01:01","slug":"as-entidades-down-de-galicia-tamen-conmemoraron-o-dia-mundial-da-sindrome-de-down","status":"publish","type":"post","link":"https:\/\/downgalicia.org\/gl-lf\/as-entidades-down-de-galicia-tamen-conmemoraron-o-dia-mundial-da-sindrome-de-down\/","title":{"rendered":"As entidades Down de Galicia tam\u00e9n conmemoraron o D\u00eda Mundial da s\u00edndrome de Down"},"content":{"rendered":"

As entidades Down de Galicia tam\u00e9n quixeron conmemorar o D\u00eda Mundial da s\u00edndrome de Down<\/strong> con numerosos actos reivindicativos e de sensibilizaci\u00f3n por toda a comunidade aut\u00f3noma. As\u00ed, ademais do acto central da Federaci\u00f3n e a Fundaci\u00f3n Down Compostela<\/a>, nas sete principais cidades de Galicia, persoas usuarias de todas as entidades membro da Federaci\u00f3n Down Galicia quixeron sa\u00edr \u00e1 r\u00faa a facer escoitar a s\u00faa voz.<\/p>\n

A sede de Down Vigo<\/strong> recibiu a visita de Ignacio L\u00f3pez-Chaves, delegado da Xunta na cidade ol\u00edvica, e de Marta Iglesias, xefa territorial da Conseller\u00eda de Pol\u00edtica Social, que quixeron co\u00f1ecer de primeira man o traballo levado a cabo pola asociaci\u00f3n. Membros da xunta directiva, profesionais e persoas usuarias da entidade ensin\u00e1ronlle aos visitantes o local no que desenvolven as s\u00faas actividades, podendo estes comprobar in situ<\/em> o traballo que realizan na asociaci\u00f3n a diario.<\/p>\n

Down Pontevedra Xuntos<\/strong> comezou o venres unha nova etapa nun local de m\u00e1is de 500 metros cadrados que permitir\u00e1 mellorar a calidade dos servizos ofrecidos aos seus usuarios e usuarias. A inauguraci\u00f3n, na que participaron representantes da Xunta de Galicia, a Deputaci\u00f3n de Pontevedra e o Concello da cidade, congregou a case 100 persoas nun acto pr\u00f3ximo e moi emotivo.<\/p>\n

Na cidade de Ferrol, Teima Down Ferrol<\/strong> organizou d\u00faas acci\u00f3ns de sensibilizaci\u00f3n nas que participaron persoas usuarias e profesionais da entidade, as\u00ed como moitas das familias que conforman a mesma. Pola ma\u00f1\u00e1, os membros da asociaci\u00f3n visitaron o concello, onde Ceci e Toni, membros da entidade, leron un manifesto reivindicativo nun acto institucional no que tam\u00e9n intervi\u00f1eron o alcalde da cidade, Jorge Su\u00e1rez, e a presidenta de Teima Down Ferrol, Patricia Serantes. Pola tarde, familias e persoas usuarias da entidade asistiron o acendido da casa consistorial coas cores representativas do movemento asociativo da s\u00edndrome de Down, azul e amarelo. Al\u00ed, Rebeca, irm\u00e1 de Aitana, leu unha carta dedicada \u00e1 s\u00faa irm\u00e1 coa s\u00edndrome de Down:<\/p>\n

\u201cCh\u00e1mome Rebeca e son irm\u00e1 de Aitana desde hai case 6 anos.<\/em><\/span><\/p>\n

Hoxe \u00e9 21 de marzo, empeza a primavera, \u00e9 o d\u00eda mundial da s\u00edndrome de Down e pensei que era un bo momento para dicirlle \u00e1 mi\u00f1a irm\u00e1 e ao mundo algunhas cousas importantes para min. <\/em><\/span><\/p>\n

Entend\u00edn que eras \u00fanica cando notei que a t\u00faa vida cambiaba a perspectiva de quen te rodea. Que os teus tempos, pausados, fac\u00edanme m\u00e1is paciente e m\u00e1is orgullosa dos teus logros\u2026A t\u00faa condici\u00f3n non te limita; vexo como saltas barreiras, vexo como gran a gran de area, constr\u00faes un castelo. Sei que se te caes, ti soa te vas levantar. Que tes o teu mal car\u00e1cter, pero tam\u00e9n es pura alegr\u00eda, aut\u00e9ntica. Agora preg\u00fantome: Que far\u00eda eu sen ti? Sen as t\u00faas mostras de amor desinteresadas, sen o teu sorriso contaxioso, sen o teu\u00a0 peloteo para que non che rife,\u2026 Simplemente, non me imaxino unha vida sen ti. Tal e como es, as\u00ed, es perfecta\u2026<\/em><\/span><\/p>\n

Porque sen ti, s\u00edndrome de Down, xa non ser\u00edas Aitana. Qu\u00e9roche irm\u00e1!\u201d<\/em><\/span><\/p>\n

As persoas usuarias de Down Lugo<\/strong> quixeron aproveitar o D\u00eda Mundial da s\u00edndrome de Down para sa\u00edr \u00e1 r\u00faa e dicir ben alto e ben claro que \u201co desenvolvemento dunha sociedade est\u00e1 baseado na diversidade\u201d. Acompa\u00f1ados por representantes do Goberno, da Xunta de Galicia, do Concello e da Deputaci\u00f3n de Lugo, os membros da asociaci\u00f3n fixeron un percorrido por todos os edificios iluminados de azul e amarelo en conmemoraci\u00f3n deste d\u00eda. Unha vez na Muralla de Lugo, unha representante da entidade leu o Manifesto pola promoci\u00f3n da autonom\u00eda persoal<\/em> diante dos al\u00ed presentes.<\/p>\n

Down Coru\u00f1a<\/strong> presentou con motivo deste D\u00eda Mundial a s\u00faa tradicional curtametraxe que, nesta ocasi\u00f3n, leva por t\u00edtulo \u201cA mirada\u201d.<\/a> Esta peza audiovisual pretende destacar a normalidade na vida diaria das persoas coa s\u00edndrome de Down e a necesidade dun cambio na mirada de todas as persoas que conformamos a sociedade. Nun acto, no que tam\u00e9n celebraron os seus 18 anos, a asociaci\u00f3n compartiu con todos os presentes varias fotograf\u00edas de Ana Amado que te\u00f1en como protagonistas a varios mozos e mozas da entidade e que optan aos prestixiosos Sony World Photography<\/em> deste ano.<\/p>\n

Por \u00faltimo, a entidade m\u00e1is nova da Federaci\u00f3n, Down Ourense<\/strong>, tam\u00e9n quixo sa\u00edr \u00e1 r\u00faa para ler o Manifesto pola promoci\u00f3n da autonom\u00eda persoal<\/em>. Acompa\u00f1ados polo alcalde da cidade, membros da asociaci\u00f3n afirmaron con rotundidade que \u201cnon somos cidad\u00e1ns de segunda\u201d e que \u201cas persoas coa s\u00edndrome de Down somos seres humanos dignos de todo dereito\u201d.<\/p>\n","protected":false},"excerpt":{"rendered":"

As entidades Down de Galicia tam\u00e9n quixeron conmemorar o D\u00eda Mundial da s\u00edndrome de Down con numerosos actos reivindicativos e de sensibilizaci\u00f3n por toda a comunidade aut\u00f3noma. As\u00ed, ademais do acto central da Federaci\u00f3n e a Fundaci\u00f3n Down Compostela, nas…<\/p>\n","protected":false},"author":1,"featured_media":15445,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"give_campaign_id":0,"footnotes":""},"categories":[592,593],"tags":[],"class_list":["post-15444","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias-sindrome-de-down-gl-lf","category-novas-gl-lf"],"acf":[],"yoast_head":"\nAs entidades Down de Galicia tam\u00e9n conmemoraron o D\u00eda Mundial da s\u00edndrome de Down • Federaci\u00f3n Down Galicia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/downgalicia.org\/gl-lf\/as-entidades-down-de-galicia-tamen-conmemoraron-o-dia-mundial-da-sindrome-de-down\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"As entidades Down de Galicia tam\u00e9n conmemoraron o D\u00eda Mundial da s\u00edndrome de Down • Federaci\u00f3n Down Galicia\" \/>\n<meta property=\"og:description\" content=\"As entidades Down de Galicia tam\u00e9n quixeron conmemorar o D\u00eda Mundial da s\u00edndrome de Down con numerosos actos reivindicativos e de sensibilizaci\u00f3n por toda a comunidade aut\u00f3noma. 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